True, but you may be able to learn to control the levels of kinase in your body through activity and diet.
Worked for me. took about 12 years, several suicide attempts, and lots of failures (social and academically), but now I'm sort of functional. (Reynod's, Acolasia, ADHD, Mild Dislexia, Hypoglycemia, unhealthy low levels of cholesterol, iron deficiency, Asthma). I'd account about 75% of my semi-normalcy to self-study/diet/controlled metabolism modifying exersize.
My Seratonin uptake has changed dramatically enough that before I started working on this myself, my doctor had me on so much medication to balance out my brain chemichals that they had to check my heart once a week to make sure I wasn't going to die. I was on medication for 4 years before I started doing Yoga/Martial Arts/watching my diet, daily habits, sleep cycles, etc. After 6 years of work, I was completely off the medication. After 12 years, my hypoglycemia is pretty much under control, the Reynods is completely under control, and the Asthma is gone. The Acolasia is still a problem, but I have learned to control my throat muscles by conscious thought (ie like taking control over your heart rate). so I can survive. All of these things I was told were impossible by doctors when I was younger, and I have proved them wrong.
What ever your doctor tells you, listen to him. Then go to a second doctor for independant verification of the study results. Then go talk to someone who knows about alternative therapies.
edit: I just saw the link in your post, and went to read the article. notice how it says at the top that the symptoms can be controlled with diet and exersize?
No, you may never be able to run a mile. So? While yes, not being able to do something sucks, it's not the end of the world. You can still walk that mile. Learn to enjoy the scenery as you take your time.
Your life and your body is what it is. There is no usefullness to heming and hawing over it. Fix what you can, and steadily work on everything else, just in case you can improve on it. Don't let anyone tell you what you can and can't do, find out for your self. If you can't run a mile in under 8 minutes, then you can't run a mile in under 8 minutes. I can't fast for more than 6 hours, though my spiritual beliefs suggest that I fast for a day or two everyonce in a while. I would like to try that, but if I do, I will die. That's how my body is. That's just how life works. When I was younger, I couldn't go 3 hours without eating; I've been working on it, and it's improved slightly as I've gotten older. I doubt I'll ever be able to go on a vision quest or fast in meditation for a week, though, no matter how much effort I put into it.